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Independent senior consultant specializing in strategic planning, evaluation, advocacy and communications. Speaker and Life Coach.
I’ve been an advocate for Latin American patients since the foundation of SLHP, as a pioneer not only for pulmonary hypertension patients but also for all pathologies of rare diseases in these patients. I am the Honorary Founding President and CEO of the Sociedad Latina de Hipertensión Pulmonar (SLHP), ex-member of the Board of Directors for the International Alliance of Patients Organization (IAPO), and member and representative of the Rare Diseases International (RDI) committee.
When I first started the project back in 2005, the aim was to raise awareness about pulmonary hypertension in Latin America. There were no patients’ organizations devoted to this, nor to help them access to medicines. Very few doctors specialized in the area and there was virtually no information available in Spanish.